Saturday, March 17, 2012

Another lymphoma experience

Yesterday I ran across a book called Bald in the Land of Big Hair. It was written by a woman name Joni Rodgers.  She was diagnosed with the same kind of nonHodgkins lymphoma that I had. I don't usually like reading books about people who have cancer. But that changed when I got it myself. This woman was married and raising young children when she got the disease. She is a great writer with a great sense of humor. She made me smile in recognition as she described her journey. But here is the interesting thing: Her experience with chemo therapy was vastly afferent from mine. She had cancer in 1996. She was given the same CHOP treatment I got and to that was added another drug called Bleomycin that I haven't heard of. She was fitted with a catheter that snaked from her arm all the way to her heart. This was used to administer the chemotherapy. Another difference is that she was given a pump connected to the port that administered the adriamycin over a three day period.  It needed constant attention. I got the adriamycin in my day long chemo session and left with nothing more than a dressing over the IV site.She was sick as a dog, throwing up, weak, tired. Her blood counts went way down and the chemo had to be postponed once. This was so very different from my experience with chemo. I think this is because they have refined the treatment. Or it could be just one of God's little miracles. Yet, why should I get the miracle and she didn't????? While she was being treated two people who started chemo with the same diagnosis on the same day as her, died!
I have been told that the Rutuxin is the drug that pushed the survival rate to 90%. And the Nuelesta is keeping my blood counts normal.
Again Im reminded of the ordeal that my fellow cancer patients have suffered compared to me!!!! It is sobering.

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